Call for Panel Member: Northern Care Alliance Research Collection (NCARC) – Tissue Biobank – Collection and Review Panel

A member of the public is invited to join a Collection and Review Panel, which will contribute to the use of samples, tissue and/or data within our biobank for use in biomedical research.

This is a great opportunity to contribute to how the Northern Care Alliance Research Collection (NCARC) utilises samples, tissue and data resource that could shape future healthcare services and treatment of our patients.

Background

NCARC is a generic research tissue bank with permission to authorise research using collected tissue and NHS data.

NCARC provides a powerful platform to enable important biomedical research that is of great relevance to public health and population-based research, which can lead to improvements in the prevention of disease as well as the better diagnosis, care and treatment for patients.

Our biobank collects tissue and samples, alongside clinical data, which our patient population have generously allowed us to use.   This type of biomaterial and its associated clinical data is vital in developing important new tests, clinical procedures and medications that may go on to help diagnose and treat other patients in the future.

You can find out more about NCARC and our research activities at  NCARC

Eligibility

We welcome applications to the NCARC Collection and Review Panel from people who live in, or access healthcare services across the Northern Care Alliance footprint   –  Salford, Bury, Rochdale and Oldham – and who have a keen interest in how biobanks provide a critical resource in supporting biomedical research.

We are looking for someone who can help to ensure the views, experiences and interests of local patients, carers and services users inform the decision for approving access to biomaterial and data within our biobank.

Collection & Review Panel Members

In addition to two individuals providing their views from a public perspective, membership will include experts from across Northern Care Alliance NHS Foundation Trust (NCA) who collectively have the qualifications and experience to review and evaluate the scientific, medical, and ethical implications of any proposed research.

Role, commitment & payments

Panel members are required to provide feedback on whether samples and/or data should be provided to researchers as requested, based on the information provided in the Access application form.

Panel members should be able and willing to:

  • review Access application forms – these will be received on an ad hoc basis against key criteria. Each application will require review within 7 working days.
  • provide brief written feedback (via email) either in approval or objection of the Access application form, for example explaining any potential concerns or general comments about the application.
  • communicate electronically by email.
  • review confidential or sensitive information.
  • willing to sign and comply with a confidentiality agreement.

Training and support will be made available to enable people to be fully involved, some of which may be done remotely/online.

This is a voluntary position, however a fixed payment of £20 per application reviewed and submitted within the requested timeframe will be made in recognition of your contribution.

Receiving payment of a fee for your involvement in research may have implications for you, especially if you are unemployed, receiving state benefits or retired. This is because the payment you receive could be treated as earnings. If you think you may be affected, we advise you to contact your local Citizens Advice Bureau by phone 0800 144 8848 or at  https://www.citizensadvice.org.uk/

Person Specification –

Knowledge and experience

  • Able to demonstrate a basic understanding of and interest in health care services.
  • Knowledge of how biobanks can support research
  • Good understanding of the various health and wellbeing issues/challenges.
  • Have a broad interest in how health related research can make improvements to care.
  • Knowledge of the local communities served by the NCA.

Personal characteristics

  • Passionate about promoting better outcomes in health.
  • Ability to work in partnership with a range of people.
  • A diplomatic and sensitive approach.
  • Appreciation of the diverse needs of people using healthcare services.
  • Demonstrates commitment to equality and diversity.

Skills and abilities

  • Good communication and interpersonal skills to contribute effectively to the work of the Collection and Review Panel.
  • Able to support the culture and values of NCA. For further information about NCA, please visit the website https://www.northerncarealliance.nhs.uk/about-us
  • Able to present a wide perspective of views from local communities.
  • A willingness and ability to devote the time and effort required for reviewing Access applications

Application process

Please read the description and specification above fully before applying. This will help you to identify how your experiences could contribute to the Collection and Review Panel

To apply please complete the application form, by clicking here  . Make sure you provide details of the experience, interests and skills you can bring to the panel and explain how you meet the criteria in the person specification above.

The information in the application form will be used to shortlist applications and to invite suitable candidates for a virtual interview with a member of the NCARC team.

If you have any queries or would like further information about this opportunity, please contact NCARC@nca.nhs.uk.

Closing date for application is Friday 25 February 2022