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Fundraising to support fibromuscular dysplasia research

A new fundraising effort will support research into fibromuscular dysplasia (FMD), an under-diagnosed and rare blood vessel condition for which we do not yet know the cause or have specific treatments for.

FMD can result in high blood pressure, strokes, heart attacks and kidney impairment in young – to- middle aged people. It is a paradox in that it causes vascular problems in people without traditional vascular risk factors. Although FMD can affect all ages, including children, it disproportionately affects young to middle aged women. Men can have a more aggressive course.

FMD is understudied and many questions remain. Following on from the UK and Ireland’s first patient information day on FMD in 2019, a patient-derived wish list was created. In response to this, Dr Tina Chrysochou and the team setp:

  • The first dedicated and multi-disciplinary FMD clinic at Salford Royal Hospital to offer a bespoke and individual service
  • A patient support group, FMD – UK & Ireland to raise awareness and offer peer support
  • The UK FMD study, the first registry -type study collecting demographic data for the UK. Salford Royal Hospital, part of Northern Care Alliance, is the principal investigation site for this.

The team are actively looking towards future and novel studies to aid understanding of FMD.

Hydraulics firm Pirtek UK and Ireland is supporting the NorthCare Charity to raise funds for research into Fibromuscular Dysplasia (FMD). If you would like to donate please follow the link below:

Fundraiser by Pirtek UK and Ireland : Pirtek charity of choice (gofundme.com)

 

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