Patient-led charity supports research into rare and incurable genetic condition
A new transatlantic partnership will support research aiming to find an effective treatment for a rare genetic condition. Neurofibromatosis type...
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MoreNeurosurgeon Kenny wins first UK fellowship with famed cancer hospital
Neurosurgeon Kenny Yu has become the first ever UK clinician to be given a prestigious research and clinical fellowship at...
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MoreImproving care for people with rare diseases
Today (28 February) is Rare Disease Day – a chance to raise awareness of these conditions and to highlight the...